Wegener's Granulomatosis Forums

Online Forums

Wegeners-Granulomatosis.com
This is the largest and most active forum for Wegener's Granulomatosis. Registration is free and very simple. Most of the members are either Wegener's patients or family members of Wegener's patients and are extremely helpful and generous with their time.

Wegenersnet.org
This forum is less active, but still provides helpful dialog. Many Wegener's patients and their advocates belong to multiple forums.

Face to Face groups

Long Beach Symposium

The All Star Vasculitis Symposium is held bi-annually and is the largest meeting of vasculitis patients, family, and vasculitis experts in the world. The location changes each time the event is held. This year the event is being held at the Westin Long Beach Hotel in Long Beach, California. The event will run from July 30th to August 1st. This will be the first year the symposium is held in the western US.

Vasculitis Foundation Support

The Vasculitis Foundation provides a list of contacts (by geography) that can provide information on support groups for Wegner's Granulomatosis and Vasculitis in general. U.S. and international support groups are available.

Wegener's Granulomatosis Support Group of Australia

Vasculitis Foundation Canada

Create a New Group

To propose a new support group in your area, or learn more about existing Face to Face Wegener's Granulomatosis support groups that are in the process of forming - join the Wegeners-granulomatosis.com forum and read the support groups section.